I am writing this blog as a part of a fantastic initiative by Sakshi Varma to spread awareness about disability on the occasion of International Day of Persons with Disability. It is also a great pleasure for my team and I to be partners in this bloghop. While we at Bookosmia have been very proud of ‘Not That Different’-our child led movement to embrace neurodiversity and over the last one year have been working actively with parents,caregivers and organizations working in this field, this blog hop has been an absolute surprise. The spread of angles on the theme of disability have been an eye opener for us- from stereotypes to fashion, similarities with nature and investing, spirutality to schooling, every blog has approached this topic from a fresh angle. It has made us realize that there is not just a single dimension to disability. Just the way there is not a single dimension to any person.
At Bookosmia, we believe in the power and importance of allowing young children to speak up, feel heard and gain the confidence to become better and more engaged citizens. In my blog today, I would like to share about our takeaways from the first ever Stories for Inclusion Fest that we launched in Aug’22 and given its massive success, will be making an annual event bringing together neurodiverse and neurotypical children and young adults. How? What?Why? Read about our journey. And journeys are typically long, so buckle up for a longish ride!
A small victory. But a significant one.
In Aug’22, we launched a month long ‘Stories for Inclusion’ Festival where neurodiverse kids and young adults share their stories through art/video/text and neurotypical kids watch them, engage with them and share messages for these wonderful storytellers, every single day!
We found 2nd August Friendship Day as a perfect day to usher in a new flavour to friendship- Listen to new stories, make different friends.
Of course, as a team, we were excited but also quite nervous!
There were no previous instances of a festival like this, connecting the otherwise siloed communities. Yes, as India’s largest publishing platform for kids from 150+ locations worldwide, we know that young people like stories, on varied themes and through varied channels (audio/video/text) but would they warm up to stories from the neurodiverse community? The second key question is if neurodiverse kids even want to share their stories and soak in the spotlight, in the first place.
It seemed like a shot in the dark, until it wasn’t.
Here is what we realized, when the lights were turned on-
- Neurodiverse kids and young adults DO want platforms where they get the spotlight
We were buoyed on by the strong belief of our partner Shivani Dhillon, an award winning social entrepreneur and Founder of Samvid Stories and Beyond, Down Syndrome Support Group India and Fellow, India Inclusion Summit. Shivani has been running storytelling workshops for neurodiverse kids for a while and felt that while neurotypical kids have so many occasions to be celebrated, there are none such for neurodiverse kids.
We were charmed by anecdotes of how her students who instead of listening to her tell stories, often asked her if they can narrate instead! And as a special needs mom herself, she feels that their our so many platforms that highlight and celebrate achievements of neurotypicals but that is far from true for a neurodiverse child. ‘I want my child to be acknowledged’ – This was a comment we heard from parents throughout the fest.
Inclusion comes from seeing
At Bookosmia, we published a poem by 13-year-old Akshita Yadav from Nagpur titled ‘I See You‘ as she spoke about a neurodiverse girl in her class. You could feel emotion trump information, relatability trump awareness in her poem. As in our own journey traversing this world, we realize the neurotypical community gets bogged down by big, serious, difficult words. However when a child sees another child on the screen, telling a story, there is an instant linkage. We start identifying common ground. Interest is kindled, information will follow soon.
Also while ‘neurodiverse’ is a very big label, it is easier to see and understand it than to read in blogs and information brochures that-
– A child with Down Syndrome is different from one with Autism
– A children with Autism is different from another child with Autism
– All of us have our unique ways of thinking
Neurodiversity doesn’t have to be all serious
Our partner Club Youngistan, an online activity club for young adults with diverse needs and challenges, had already busted this myth for us a few weeks back, playing a remarkably peppy and (true to their name) young, jazzy feel while showcasing interests of their neurodiverse member. It showed us that it is not necessary (or desirable) to make everything around neurodiversity a dreary, serious business. So, cool content? Yes! It can get the eyeballs it deserves.
Inclusion has to start young, not old
While all efforts to have neurodiverse hiring at workplace are fantastic, wouldn’t it be meaningful to have children understand a diverse world exists when they are young and in school. Can an ‘inclusion switch’ be turned on in them as they join the workplace and start hiring? Wouldn’t it be more organic if they grow up knowing about diversity and inclusion in schools and colleges while 6, 12, 16 instead of hearing it for the first time as a hiring manager?
So how could we engage with these youngsters in a way they would enjoy? We did the following :
Panel discussion on Inclusive books and movies
We floated a discussion panel on Zoom- and for once it wasn’t the kind you switch off the video and doze off to! All this talk of diverse books and movies but we never hear from the community it is targeted at – young readers and viewers. This was an attempt to change that. The topic was ‘Inclusive books and movies- Who got it right and who missed the mark?’This panel had four youngsters at the helm – all under 14 and what an insightful discussion it was as they discussed Rick Riordan’s affirming treatment of neurodiverse characters in his blockbuster Percy Jackson series, the subtle references to characters on the spectrum in Harry Potter to movies like Taare Zameen Par and Laal Singh Chaddha where we get a glimpse of how society often mistreats those who are deemed ‘different’ from the rest.
A session on how to write inclusive stories with award winning author Lavanya Karthik
One of the surprising revelations of the fest was that young writers often want to include diverse voices in their stories but are reluctant to do so for fear of offending the very same people they want to bat for. Therefore, this session was just what the doctor ordered. Award-winning author and illustrator Lavanya Karthik who has written many wonderful books including ‘When Adil speaks, words dance’ and the Dreamers series, offered her thoughts on inclusion, how to write characters that inspire and what are the elements of a good story that transcends across age groups and backgrounds.
An evening with para athletes to understand resilience
Words like ‘inclusion’ and ‘diversity’ will remain a word salad if youngsters do not have the opportunity to interact with people who have had different lived experiences to them Therefore, it was gladdening for us to collaborate with the wonderful folks at Go Sports Foundation, a non-profit venture working towards the development of some of India’s top talents in Olympic and Paralympic disciplines, to have an evening where our youngsters interviewed exciting young para athletes Rahul Dumpa and Devanshi Satija. Over thoughtful questions (Have you ever felt like giving up) and loads of laughter and smiles, the para athletes shared their personal stories of adversity and how they were working every day to let nothing get in the way of achieving their dreams. A great message for every child who at times feels adequate with their abilities.
The power of stories in inclusion
‘Telling a story’ has a typical connotation to it. It implies that one needs to be verbal, one needs to have a certain cognitive ability in order to recite one or to enjoy one. However, debunking the term ‘story telling’ has been the high point of this fest. 17 year old Sourav who has autism sent us a video showing how he makes a bead necklace with gentle hands and attention. That told a story. 23 year old Asavari strummed a story on her guitar. 10 year old Kabir, who is non verbal, told a story of a tiger who loves to travel, through typed words. 17-year-old Anjali from Ranchi, who has dyslexia shared an art work that stunned us but also told her own story.
And these story telling videos weren’t just ‘uploaded’.
They were cherished.
Consider the numbers. Within a few hours of posting 17 year old Harnoor’s (who has Down Syndrome) video compiling the paintings she made to tell the story of Krishna’s birth, the video racked up 400+ views and the comments came flooding – not only from her circle of family and friends but from youngsters across the world who had enjoyed the unique way of telling the story.
For 31 days, we posted a story a day and we were overwhelmed by the diverse set of children responding to them- as young as 8, from the metro cities but also from smaller places like Aligarh and Raipur to international cities like Sharjah and London. Not only were these young viewers (mostly neurotypicals) enjoying and commenting on the videos, but they were also sharing them with their friends, signaling an ‘aha’ moment for us in the fest –
That inclusion doesn’t have to be something special we do. It is just another extension of what we do everyday – like the way we wait our turn at the supermarket counter or how we say ‘Bless you’ when someone sneezes.
And finally, that neurodiversity is not someone else’s problem
The fest has shown us that when given an opportunity and an environment to understand, neurotypicals develop the courage to ask the questions they have always wanted to ask but couldn’t for the fear of using the wrong words. These questions will become the cornerstone of the ideas that will invariably lead to real change.
Our partner for the fest, Dr. Swati Popat Vats, a renowned educator and President of the Podar Education Network and ECA-APER with membership of 38,0000+ schools, spoke about the importance of inclusion in classrooms – from training teachers to be more sensitive to children’s abilities especially post pandemic and helping children understand that every child is diverse. It’s just that some children have different needs.
It was heartening to hear 14 year old Aadya, on listening to Arshnoordeep’s (with Down Syndrome) story, say that he wrote a story that every child needs to learn. The key word being ‘every child’. This was one of the many examples of how, through these unique stories and the enthusiastic reception to them, it was clear that inclusion starts from conversations and that understanding neurodiversity is not a favour one does for others.
The onus is on all of us to accept and embrace our differences in order to welcome a beautifully diverse future.
And that, in a nutshell, was the Stories for Inclusion fest. We were overwhelmed by the impact it created, by the outpouring of love and excitement from the parent and caregiver community. So when they recommended we keep this beautiful thing going, beyond the month long fest, we accepted with a big grin. Messages like these from Prachi Deo, Founder of Nayi Disha, powers us on to continue spotlighting our neurodiverse storytellers. Nayi Disha is an organization that plays the role of a life long partner for families impacted by ADHD, Autism, Cerebral Palsy, DownSyndrome and other Intellectual/Developmental Disabilities.
We hope to take our learnings from this edition and come back with a bang next year with more stories, more partners and more happy moments!
And finally we join our co-founder Mugdha Kalra, one of the loudest voices in neurodiversity in India and one of the only 2 Indians on BBC 100 Women 2021, for her work at Not That Different, in her conviction that we do not need to create another world for neurodiverse people. We need our world to be inclusive of neurodiverse people.
Please do visit our Inclusion Stories Fest’22 Page or the youtube channel for the fest.
About- Nidhi is the Founder & CEO of Bookosmia(smell of books). A ex-banker of 10 years, an IIM and LSR alum, mother to 2 beautiful girls, an avid reader, podcaster, lover of all things Lucknawi. A neurodiversity ally and mental health advocate, Nidhi launched the Not That Different movement with her co-founders Archana Mohan and Mugdha Kalra. As an avid reader, Nidhi runs a podcast ‘ Traveling Time with Books’ with her co-host Kamini Gupta to chat and analyze books on history with authors.
This post is a part of “International Day of Disabled Persons” blog hop hosted by Sakshi Varma – Tripleamommy in collaboration with Bookosmia. #IDPD2022Bloghop.
Access all posts of this bloghop at https://tripleamommy.com/2022/12/02/idpd2022-lets-make-this-world-a-more-inclusive-space/
The young ones fighting battles. A child with dislexia her painting says it all. How painful should it be living it. Awarness, acceptance and giving them spotlight would bring a goodness and happiness into life of differently abled.
Thanks Sivaranjini, I agree. Anjali paints a picture not just physically but also metaphorically of how we lack understanding of the neurodiverse mind and are ourselves worse off for it. Hopefully this would change in times to come.
Totally agree Nidhi that inclusion needs to start at a young age and very very impressed by all that you and Bookosmia are doing in this space. I hope to be able to work more with you on the D&I issues going forward!
Looking forward Sakshi! We complement each other well in a journey towards the same goal.
First of all, Kudos to the movement you are carrying out at Booksomania to embrace neurodiversity. Really liked your ‘stories for inclusion’ festival and your informative findings. Look forward to listening to your podcast Nidhi. Loads of wishes to your team and thanks for sharing the learnings.
Thank you so much! Do support the Inclusion Fest in 2023 by spreading the word- We launched last year and hope to mark friendship day every August, amplifying the message of Friendship between ALL kids.
There is no denying that each and every story is unique. They offer different lessons and insights that can be learned by anyone who takes the time to read them. Keep up the good work
Thank you Ranjeeta. Tremendous effort and hope has gone into the stories from neurodiverse kids and young adults. As you rightly say they are unique and I hope the world at large appreciates them.
You rightly said that each one is different and acceptance is a very important life lesson. Lessons a child imparts in early life leaves a lasting impact on them. Your initiative is a great way to teach kids about the beauty of differences and inclusion.
Thank you Meenal. Support from people like you keeps us going!
You hit the nail squarely on the head when you say inclusion has to start from childhood. And the most important place for a child is a school. By the excessive attention on an academic curricular learning, school has become a place for exclusion of all except those who are talented at acing exams!! Our children need to have classmates with differing abilities and needs. Thats how they will make an inclusive society. We then dont have to put out special mandates and laws. People of all kinds will be our friends !! Your month-long festival was clearly a phenomenal achievement. Wishing you more and more success in your endeavours.
It means a lot, coming from you Veda. Do support us in the second edition of our Inclusion Fest in Aug’23 and meanwhile, feel free to keep the buzz going on the subject with your blogs.
Super PROUD of what we have achieved together. What started as a mere chat has now become a movement.
Absolutely 🙂 So much joy in seeing our idea take shape! Hope to keep it going.
Nidhi the Inclusive Storytelling Festival was testament of the fact that given the right platform, neurodiverse kids CAN DO anything. So happy to have become part of this movement.
Thanks Shivani! I remember the mix of excitement and anxiety with which we conceptualized the event. Now approaching it this year with a lot more confidence and conviction, thanks to the amazing response from all participants.
Loved your stories for inclusion program. The post resonates on so many points. Especially idea of inclusivity being started from childhood. Kudos to the great effort of bookosmia.
Thank you Sreeparna. Do share about it in your network to amplify the message of inclusion from childhood.
Appreciate you sharing these with us. It’s another platform for their story and works to be appreciated by others. Sometimes, this is what we most needed to spread more awareness to others for them to have access to and learn about how amazing they are.
Thank you Jeannine. I remember your blog talking about the same idea- bringing in inclusion from childhood and I couldn’t agree more with you.
Thanks for your unique initiative that provided a platform for expressions by neuro-diverse children.
It makes complete sense that we “catch them young & watch them grow” and in that sense providing opportunities to interact with people who have had different lived experiences.
Keep up the great work…
Thank you Sachin. While the 2nd edition of the festival will happen in Aug’23, we do publish creative ideas by ALL kids through the year.Do spread the word in your network.
I would love to stay connected with and engage with this process and festival if possible.
These words will stay with me to share ahead…” That inclusion doesn’t have to be something special we do. It is just another extension of what we do everyday – like the way we wait our turn at the supermarket counter or how we say ‘Bless you’ when someone sneezes.”
Thank you so much Aanchal.We would love for you to participate in any way you can. While the 2nd edition of the festival will happen in Aug’23, we do publish creative ideas by ALL kids through the year.Do spread the word in your network. You have my no. Would love to chat up anytime.
First of all lovely to interact and make acquaintance with a fellow Lakhnawi. Amazingly informative post. I do believe that we as a country and citizens need proper conditioning to tackle on so many issues right from childhood whether its about PwD or gender equality or similar issues. You are doing a great job. Keep the good work going.
Manas, thank you and do spread the word on ‘inclusion from childhood’.
Always a delight meeting someone from Lucknow 🙂
Hi Nidhi, 100% agree – it’s crucial to get children to understand inclusion at a young age rather than be suddenly exposed to it as adults. This is possibly the reason why we are still so behind as a society when it comes to creating inclusive workspaces, public spaces and even behaving with warmth towards people with different needs. Congratulations on kickstarting the Inclusion Fest! Great work, is it an annual event? How could I get more involved?
Svetha, thanks a lot. While the 2nd edition of the festival will happen in Aug’23 marking Friendship Day, we do publish creative ideas by ALL kids and run various campaigns through the year. Do spread the word in your network.
Would love for you to join hands and support the initiative. You have my no. from the Whatsapp group. Let’s chat up sometime.
I’m awestruck by this initiative by Bookosmia, Nidhi. This post was enlightening in more ways than one. I’ll be watching the videos soon with my teenager. I’m sure there’s plenty of learning there for parents and children alike. Somehow I missed the last year’s festival and looking forward to this year’s inclusion festival.
It is extremely inspiring to learn about your initiative and the events that are being put up where everyone neurodiverse or not can participate and express. Never heard of such a platform and hope you take it to greater heights.
Thank you so much Shvetha. We have only just started on this journey and hope to take the message far and wide 🙂
Great to know about work of Bookosmia in promoting work of neuro-diverse kids. Thank you for being passionate about it.
Thank you Archana. We hope the platform is used by ALL kids 🙂
A great initiative by you guys to raise awareness about neurodiversity. I feel it is paramount to sensitize kids towards disabilities from a young age and give them the necessary knowledge and exposure.